No Consensus on Definition Criteria for Stroke Registry Common Data Elements

No Consensus on Definition Criteria for Stroke Registry Common Data Elements

BACKGROUND Stroke registries contribute to the conduct of clinical research and to the assessment of health care quality control. Efforts to compare clinical outcomes and quality indicators between centers are dependent on standardized data elements, but it is unknown how stroke physicians define common data elements, such as hypertension or diabetes, when collecting data for registries at thei...

Entropy-based Consensus for Distributed Data Clustering

The increasingly larger scale of available data and the more restrictive concerns on their privacy are some of the challenging aspects of data mining today. In this paper, Entropy-based Consensus on Cluster Centers (EC3) is introduced for clustering in distributed systems with a consideration for confidentiality of data; i.e. it is the negotiations among local cluster centers that are used in t...

Consensus on the criteria needed for creating a rare-disease patient registry. A Delphi study.

BACKGROUND Patient registries (PRs) are important tools for public-health surveillance and rare-disease research. The purpose of this study is to identify the most important criteria for the creation of a rare-disease PR that could be used by public-health authorities to develop health policies. METHODS A consensus-development Delphi study was used, with participants selected for their expert...

Nosocomial Infections: The Definition Criteria

Common data elements for neurological registries.

core data fields to include in all neurological registries in Canada. This project targeted neurological registries in Canada for all priority neurological conditions identified in the call for proposal including: Alzheimer’s disease (AD) and other dementias, amyotrophic lateral sclerosis (ALS), brain tumours, cerebral palsy (CP), dystonia, epilepsy, Huntington’s disease (HD), hydrocephalus, mu...